We just spoke with the doctors this morning and have the test results from this early morning also.
Emmett's creatinine is .7 which is great. Normal range is below 1. So his kidney's seem to be doing well in that area. He needs to be eating and drinking a lot more (he's been throwing up, sometimes even at the smell of food that we bring into his room) so we are working on getting his nutrition leveled up, through his IV. Anderson's creatinine is 1.03 which is down from 1.09 from yesterday. I just spoke with the Specialist from Portland and he said both boys are looking great. They probably won't need anymore blood transfusions. Emmett's platelets are still pretty low but we are keeping an eye on him for any bleeding. He'll get a platelet transfusion if he starts to bleed at all. So, his platelets are 23 and his hemoglobin and hematocrit are 8 ish and 21. Anderson's are 9 and 24. They still need to rise but they are getting there. 13 is a good range from what I've been told. When they drop to 7 is about the time they call for a blood transfusion. Anderson needs to work on eating more so they are going to try and tweak his diet so that he has more options. Anderson's been on a low Sodium, low Phosphorus, and low Potassium diet so his options have been a little hard for a 4 year old. He's started asking for food but he only wants grapes and chocolate milk. He's been paging the nurses for a cheese burger so when I talked to the nutritionist just now she said they'd allow a hamburger, as long as he didn't go crazy with it. He's sleeping now, but he will be thrilled when he wakes up. We've been trying to get Anderson to eat bananas for the potassium since his levels have been low. I convinced him to eat a banana and with every 2 bites he had, I would give him a fruit snack. He at the whole banana, he did that again the next day and ended up throwing up so now he blames bananas for making him throw up. He refuses to think the fruit snacks had anything to do with it. :) They are working at adding more potassium to Emmett's IV since his are low too. He's been struggling to keep food down so the IV is the best way as of now.
With as early as we caught Emmett's E.Coli and his HUS he is doing amazing compared to where Anderson had to drop before things started to go in the right direction. That we are so grateful for. Advice to parents, if you think something is wrong or just not quit right. Check it out, even if your doc thinks things are fine and no big deal. Anderson may not be with us if we had kept to the initial diagnosis of Strep Throat and had continued on with the antibiotics. We spoke with 3 different places before we found someone to listen to us and for them to see that things were not right. And because of that, Emmett is leaps and bounds ahead of were Anderson had to go to come back around. We are grateful for the Lord's hand in all of this. We had no idea that what we thought was a simple and innocent tummy ache would lead to 2 weeks or so in the hospital for both our boys.
The specialists did mention that some children that come down with HUS can have symptoms come up later on, even up to 18 years later. Anderson had some bad levels with his pancreas so there's a risk years from now he may develop diabetes because of all that his body has been through. Other risks are high blood pressure, intestinal issues and the obvious kidney issues. Emmett is at a lower risk as of now because of how well his levels didn't skyrocket too much out of control, causing less stress on the body. We know that when Anderson was at his worse and he was extremely anemic he developed a heart murmur (which as of now, has gone away).So, all of this has a huge impact on all parts of the body. We are thinking positive and know that he has had blessings and whatever comes our way we can handle it.
They will be running more blood tests on Emmett later today and Anderson is doing well enough he can wait until the morning for his next blood tests. We will keep you posted.
Side note: Once Emmett was admitted it started to get confusing for everyone on keeping the boys information from getting crossed while just talking. So, they made sure to give them different nurses. Well, I guess there's was a mix up in the something yesterday, that was caught, but they decided instead of having the boys right next door to each other it would help to separate them by even more space. So, this morning they took me around to a few rooms and I was able to choose which one was best. Emmett now has a new room on the other side of the unit. It's nice because we get to have a little walk and are able to stretch our legs more since we've are in isolation, but a little bit of a bummer because now we definitely NEED someone with each kid at all times instead of just switching from room to room or keeping the doors open when there's only one of us. We will adapt.
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